Orphanet: The portal for rare diseases and orphan drugs
Orphanet is THE international database on rare diseases. It contains information on 6 000 rare diseases: descriptions, documents and a directory of resources (specialized clinics, diagnostic laboratories, patient associations, research projects, clinical trials, orphan drugs, etc.) in more than 40 countries. It now includes resources found in Quebec and the other Canadian provinces. We will introduce you to Orphanet-Quebec/Canada and will show you how to surf on the Orphanet portal and find all the information you want on a rare disease.